The handbook has been developed to support young adults during the overwhelming initial period after a cancer diagnosis. It contains both practical information and personal stories, and is intended to complement medical care.
– The initial period after the diagnosis was overwhelming and frightening. There were so many thoughts, questions, and new perspectives. It was a mixture of anger, fear, and anxiety, but also hope and inner strength that gradually took shape, says a young adult member of Ung Cancer after receiving their cancer diagnosis.
Through practical advice and guidance on issues such as the Swedish Social Insurance Agency, studies, relationships, and emotional reactions, the handbook aims to give young adults better support in managing everyday life after their diagnosis. The book also includes interactive sections where readers can write, draw, and reflect – a way to process thoughts and feelings during a difficult time.
The goal is that all young adults diagnosed with cancer will receive the handbook in hospital at the time of their diagnosis.
In autumn 2025, a pilot project will begin in collaboration with healthcare providers in all Swedish healthcare regions. Hospitals will distribute the book to newly diagnosed young adults, and together with Ung Cancer, evaluate how the material is received.
Those who read the book will have the opportunity to provide feedback through an evaluation, and a special evaluation group of Ung Cancer members will contribute their experiences and perspectives.
The results from the pilot project will form the basis for an updated and expanded version of the handbook, which is planned for release in autumn 2026. The new version will be based on feedback from young people, with the aim of reaching even more hospitals and young adults across the country.
– When life is turned upside down after a cancer diagnosis, it is easy to feel alone. We know that many young adults need more support at that time. The handbook is there as a hand to hold, a complement to medical care, providing recognition, reassurance, and hope when it is needed most, says Linnea Karlsen, business development manager at Ung Cancer.
